The kids had their appointments for med checks today. Simon has lost 3 pounds. I'm not quite sure what that is about. Other than the issues we have with him throwing up on a whim. Over the last few months (with the exception of last month), Simon would be playing, eating or whatever and just vomit. For no particular reason. No one seemed to be concerned about it, so he will be seeing Sydnee's gastro doctor in Cinci. Over the last week or so, he has started it again. There isn't any warning or anything. He just does it while he's eating his meal or anything. After the 3# loss, the doctor told me to make sure to keep the appointment coming with with the Gastro.

Sydnee is being taken off the Respirdal completely. It just doesn't do anything positive for her. She is nasty, sassy, etc when she's on it. Don't need that! Simon's meds are the same for now. But he wants to start decreasing the Respirdal in August. That's moving in a good direction. Although this med has helped him the most. But we have seen big changes to the good lately. I think it's maturity to a certain extent. He is recognizing when he's getting out of line and is able to reel himself back in before he gets out of control.

I have had several people over the last week to ten days tell me that they couldn't believe what I do for my kids. And how lucky my kids are to have a parent find the resources that we need. That reminded me of sometihng that was said to me in an email over a year ago by a family member. That was "if you would stop taking your kids to doctors all the time, and stop taking them to all of this therapy , that maybe my kids would be normal. They told me that they didn't stand a chance in this life with a parent like me. Today alone I had 3 people tell me how lucky my kids are. Now don't get me wrong, I am no where near blowing my own horn. I don't want to be the bragging parent or to be recognized for anything I have been doing for them. I just feel blessed enough to have the knowledge to do what is needed for them. I was in the medical field for quite a while and I learned things then that have helped me now with them. So I feel like I was placed in the jobs I had for a reason. Now I am able to help my children and to help other fellow parents who are in the same situation we are in.

We used to think ahead to say we wonder which college our kids would go to. But now we have to look at whether we can teach our children enough to get through school and to be successful adults in one way or another. Not by getting a sports scholarship or something of the sort. But to get along with people, etc. This is a huge goal we have set.

Below is a picture that Simon drew one morning over the weekend. He explained this to me. "Mom, this is what my brain looks like. It's me in a chair watching the TV with my refrigerator behind me. (not the stickers on the fridge). Braces on the teeth, etc. Too funny.

Now this picture was a little more drawn out. "This is me being a math person and a scientist. Mom? See my test tubes where I mix chemicals and make things? I have my math board with the problems. I am sitting at my computer, getting my signals out. See my high back chair?" Where does he come up with these things?

Tomorrow I got on a field trip with Simon. We're going to Squire Boon Caverns. I will be caved out when this trip is done. Twice in a week is enough for me.